LSPA Patient Summit

By Life Sciences Pennsylvania (other events)

Thursday, November 12 2020 8:30 AM 1:00 PM EDT

The purpose of the inaugural 2020 LSPA Patient Summit is to provide patient advocacy groups and public officials with a forum to learn about exciting developments in the life sciences ecosystem and better understand the interaction between payers, patients, innovators and policy makers. Topics for the Summit were derived from feedback provided by the LSPA Patient Advocacy Groups. 

8:30 a.m. - 9:15 a.m. – Welcome - Chris Molineaux, President & CEO, Life Sciences PA

Opening Keynote - David Fajgenbaum, MD, MBA, MSc, Assistant Professor of Medicine, Translational Medicine & Human Genetics, University of Pennsylvania, Founding Director, Center for Cytokine Storm Treatment & Laboratory (CSTL), Associate Director, Patient Impact, Orphan Disease Center, University of Pennsylvania, Co-Founder & Executive Director, Castleman Disease Collaborative Network (CDCN)

9:20 a.m.-10:00 a.m. – The Patient/Payer Discussion
Christine Ferguson, LEVERAGE
Dharma Yechuri, LEVERAGE                                   

10:05 a.m.-10:45 a.m. – Successful Company Partnerships – A Case Study
Maria Picone, Co-Founder/CEO, Trend Community
Rachel Radomski, Director, Patient Advocacy, Harmony Biosciences

10:45 a.m. – 11:00 a.m. – Break

11:00 a.m. – 11:30 a.m. – Breakthrough Story
Vikki Walton, Director of State Public Policy & External Affairs, Novartis
Gwendolyn Poles, MD, President, Sickle Cell Council & sickle cell patient

11:35 a.m.- 12:05 p.m. – Making the Case to Legislators
Representative Marcy Toepel, Chair, Rare Disease Caucus

12:10 p.m. – 1:00 p.m. – Legislative Meet-Up

Life Sciences Pennsylvania

Mailing Address

411 Swedeland Road, Suite 23-1080, King of Prussia, PA 19406