The purpose of the 2023 LSPA Patient Summit is to provide patient advocacy groups and public officials the opportunity to learn about exciting developments in the life sciences ecosystem and better understand the interaction between payers, patients, innovators and policymakers. Topics for the Summit were derived from feedback provided by the LSPA Patient Advocacy Groups and include discussions around the public health benefits of vaccines, state and federal legislative updates and changes to the clinical trial landscape.
Agenda (Subject to Change**)
- 8:30 a.m. to 8:32 a.m. – Welcome
- Christopher P. Molineaux, Life Sciences PA
- 8:33 a.m. to 8:45 a.m. – Orphan Cures Act Update
- Congressman John Joyce, MD (R, PA-13)
- 8:50 a.m. – 9:05 a.m. – Company Presentation: Senzo Diagnostics
- Jeremy Stackawitz, CEO, Senzo Diagnostics
- 9:10 a.m. to 10:15 a.m. – Sharing Your Story: Effective Patient Advocacy in 2023
- Bruce and Kelly Stahlman, Novocure Patient Ambassadors
- Sabina Kineen, Amicus Therapeutics Patient Advocate
- Amanda Sowinski, Associate Director, Global Pompe Lead, Patient Advocacy, Amicus
- Moderator: Ankita Janakiraman, Senior Manage, Brand Strategy & Communications, Novocure
- 10:20 a.m. to 11:05 a.m. – Innovation in Diabetes
- George Huntley, CEO, Diabetes Leadership Council
- Kristin Murphy, Senior Director, Federal Government Relations, BIO
- Michael Hufford, CEO and Co-Founfer, LyGenesis
- Moderator: Dr. Shweta Kulkarni, Sanofi Medical Scientific Liaison
- 11:10 a.m. to 11:25 a.m. – Company Presentation: ARS Pharma
- Eric Karas, Chief Commercial Officer, ARS Pharma
- 11:30 a.m. to 12:00 p.m. – Including the Disability Community in Clinical Trials
- Kristin Smedley, Thriving Blind
- Moderator: Donna Sattler, BMS DAWN (Differently-Abled Workplace Network)
- 12:00 p.m. to 12:30 p.m. – Ensuring Patient Access, Co-Pay Accumulators and Roadblocks to Treatment
- Charlotte Buswold, Vice President, Patient Access, Exelixis
- Matthew Prentice, Director of State Policy, Immune Deficiency Foundation o
- Moderator: Erin Hermance, Executive Director, Government Affairs, Exelixis
- 12:30 p.m. – Conclude
