The purpose of the 2022 LSPA Patient Summit is to provide patient advocacy groups and public officials the opportunity to learn about exciting developments in the life sciences ecosystem and better understand the interaction between payers, patients, innovators and policymakers. Topics for the Summit were derived from feedback provided by the LSPA Patient Advocacy Groups.
Agenda:
8:30 a.m. to 8:35 a.m. – Welcome
8:35 a.m. to 9:15 a.m. – Pennsylvania Political Recap
- Joe Hill, Senior Principal, Cozen O’Connor Public Strategies
- Sam Denisco, Principal, Cozen O’Connor Public Strategies
9:20 a.m. to 10:00 a.m. – Federal Policy Update
- Michele Oshman, Vice President for External Affairs, Biotechnology Innovation Organization
- Pam Traxel, Senior Vice President, American Cancer Society Cancer Action Network
10:05 a.m. to 10:45 a.m. – Innovation in Mental Health
- Brian K. Pflug, Medical Director, Neuropsychiatry, US Medical, Biogen
- Moderator: The Honorable Mike Schlossberg, Pennsylvania House of Representatives, 132nd District, Lehigh County
10:50 a.m. to 11:30 a.m. – Outcomes-Based Payment Arrangements in Medicaid
- David K. Kelley, MD, Chief Medical Officer at PA Department of Human Services, Office of Medical Assistance Programs
- Robert E. Richards, MS, MBA, Administrative Director, Cell Therapy and Transplant, Penn Medicine
- Moderator: Mary-Lacey Reuther, Head of North America Policy, Advocacy & Government Affairs, CSL Behring
11:30 a.m. to 12:15 p.m. – Patient Access Panel
- Emma Watson, PA Government Relations Director, American Cancer Society Cancer Action Network
- Suzanna Masartis, CEO, Community Liver Alliance
- Will Hubbert, Grassroots and Advocacy Manager, National Psoriasis Foundation
12:15 p.m. – 12:25 p.m. – Newborn Screen Implementation Update
- Lesa Brackbill, Parent Advocate and Outreach Coordinator for Public and Advocacy, Leukodystrophy Newborn Screening Action Network (LDNBS)
12:25 p.m. - 1:00 p.m. - Lunch with Legislators
