The purpose of the 2021 LSPA Patient Summit is to provide patient advocacy groups and public officials the opportunity to learn about exciting developments in the life sciences ecosystem and better understand the interaction between payers, patients, innovators and policymakers. Topics for the Summit were derived from feedback provided by the LSPA Patient Advocacy Groups.
Agenda:
8:30 a.m.- 9:05 a.m. – Welcome and Opening Keynote Speaker
- Dr. Alan Balch, PhD, Chief Executive Officer, Patient Advocate Foundation and National Patient Advocate Foundation
9:10 a.m.-9:40 a.m. – Working Toward a Common Goal- Companies and Patients Coming Together
- Nita Patel, Executive Director, Patient & Professional Advocacy, Amicus Therapeutics
- Amicus Patients
9:45 a.m.-10:40 a.m. – Patient Access Discussion
- Emma Watson, Pennsylvania Government Relations Director, American Cancer Society, Canada
- Brian Lehman, Director, Patient Advocacy and Strategic Alliances, Sandoz
- Pennsylvania Senator Art Haywood
- DJ Carlino, Patient
10:45 a.m. – 11:25 a.m. – Legislative Success Story (Making the Case to Legislators)
- Pennsylvania Senator Bob Mensch, Sponsor of Senate Bill 595
- Pat Halpin-Murphy, President & Founder, PA Breast Cancer Coalition
11:30 a.m. – 12:10 p.m.- Health Equity and the Life Sciences
- Romona Burress, Associate Director, Diversity & Inclusion in Clinical Trials, Janssen
- Josetta Gbemudu, Executive Director, Health Equity and Social Determinants of Health, Merck
- Emma Andrews, Vice President, Patient Advocacy Lead, Pfizer
12:15 p.m. – 1:00 p.m. – Lunch with the Legislators
